Advocacy organizations
- Abrale
ABRASTA
Algsa
Acoustic Neuroma Association
Adrenal Insifficiency United
Alliance to Cure Cavernous Malformation
American Partnership for Eosinophilic Disorders (Apfed)
Association for Creatine Deficiencies
Barth Syndrome Foundation
Batten Disease
Ben's Dream
Brightlink
Canavan Disease Research
Cancer Support Community
CFC International
The Charge Syndrome Foundation
Child Neurology Foundation
Children's Cardiomyopathy Foundation
Children's Tumor Foundation
The Cholangiocarcinoma Foundation
Circadian Sleep Disorders Network
Charcot-Marie-Tooth Association (CMTA)
Colon Cancer Alliance
ConnectMPS
Cure CADASIL
Cravat Foundation
cureCMD
Cure for EEF1A2
Cure Duchenne
CURE EPILEPSY
Cystinosis Research Foundation
Dandy-Walker Alliance
Danny Did Foundation
Dravet Syndrome Foundation - Fans for the Cure
Food Allergy Research & Education (FARE)
FasterCures
Fatty Oxidation Disorders (FOD)
Foundation for Sarcoidosis Research (FSR)
FH FoundationFacing Our Risk of Cancer Empowered (FORCE)
FPIES Foundation
Genome Connect
Global Genes
Hypertrophic Cardiomyopathy Association (HCMA)
Hereditary Colon Cancer Foundation
Hereditary Neuropathy Foundation
International Foundation For CDKL5 Research
International Essential Tremor Foundation (ietf)
I Have IIH Foundation
I have Lynch Syndrome
KCNQ2
Coats Disease Foundation
Jeffrey Modell Foundation (jm)
Center for Jewish Genetics
John Ritter Foundation for Aortic Health
Jonah's Just Begun
Joubert Syndrome & Related Disorders Foundation
Kidney Cancer Association
lymedisease.org
LGS Foundation
Lung Cancer Alliance
LSI
malecare
MARFAN FOUNDATION
MDA
MdDs Foundation
Morgellons Global Data
MPHI - Narcolepsy Network
National MPS Society
National Society of Genetic Counselors (NSGC)
National Ovarian Cancer Coalition (nocc)
The National Pancreas Foundation
National Organization for Rare Disorders (NORD)
Organic Acidemia Association
Ovarian Cancer National Alliance
Parent Heart Watch
PANCREATIC CANCER ACTION NETWORKnbs CONNECT
Parent Project Muscular Dystrophy
PCD Foundation
PCDH19 alliance
Phelan-McDermid Syndrome Foundation (pmsf)
PROSTATE CANCER FOUNDATION
PROSTATE CANCER RESEARCH INSTITUTE
RASopathiesNet
Rivkin Center for Ovarian Cancer
The Romberg's Connection
SADS FOUNDATION
Samskara Foundation (sf)
Seattle Children's Hospital Research Foundation
SHARSHERET
Small Cell Ovarian Cancer Foundation
STX BP1 Disorder
Society of Surgical Oncology
SPASTIC PARAPLEGIA FOUNDATION, INC. (SPF)
TRISOMY 18 FOUNDATION
VESTIBULAR DISORDERS ASSOCIATION
VHL Alliance
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